NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new connections to resources and specialists across our nation.
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it. The reimbursement process was easy, and payment was received promptly.
Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.
That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the conversations and connections that drive science forward.
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy organizations NORD Rare Disease Centers of Excellence are diagnosing and treating thousands of rare disease patients.
Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while knowing their loved one is well-cared-for and safe.