A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums.
I was recently diagnosed with “B-12 deficiency” at the Baylor College of Medicine in Houston. My initial diagnosis (from the EMG and nerve conduction) was CIDP. Blood tests confirmed the “B-12 deficiency” diagnosis. My treatment is intramuscular B-12 injections once every three months. I have had three injections so far. I was supposed to have seen some improvement weeks ago, but my ...
Hi. I have had CIDP since 2016. Was lucky to be diagnosed early and have had a good reaction to treatment with mainly my left foot and lower legs experiencing tne verve tingling. Recently it moved to my left foot and my balance sarted to be affected. Went from IVIG every 4 weeks back to every 3 weeks without much change. Other symptoms have presented, includung a n odd gait to my walking ...
Hello, Two weeks ago I received my first 3 IVIG loading doses for CIDP. Although many of my symptoms have improved I have noticed that my heart rate and blood pressure are up from my longterm normal. Can anyone tell me if this is something I should worry about or will it go away after a while? Thanks for your help, Petra.
Elevated Blood Pressure and Heart Rate after IVIG - GBS|CIDP Foundation ...
The problem with not having a solid diagnosis is that doctors are reluctant to give the types of treatment needed for CIDP when that treatment may be counterproductive. The symptoms of CIDP are also seen in a number of other disorders, such as MS and CMT, which can also be difficult to diagnose and which don’t respond to the normal CIDP treatments. And of course, there’s the financial ...